KicKee Pants' EB Awareness Donation Campaign // Teagyn Grant
On September 19th, 2013 Teagyn was born. We had a pretty normal pregnancy up until I developed pre-eclampsia and had to be induced. Once she was born we immediately realized there was something wrong with her feet.The doctor showed her to me quickly and she was taken away.
Once I could get into a wheelchair I was taken to the nursery to see her before she was transfered to Georgetown University Medical Centers NICU. She was beutiful. As soon as she was in my arms she immediately stopped crying. I could see in her eyes she was a fighter.whatever this was I told her we were in it together. I was unable to go with her due to the medication I was on for my pre-eclampsia. The helicopter came about an hour later and she was gone.
I sent my husband to drive up the road with her while I stayed in hospital. I had to wait 2 days. It seemed like 2 months.When I finally was released I went up the road. I finally saw my baby again and it was a very scary sight. She was covered in blisters.The doctors told me she most likely had epidermolysis bullosa(EB). We didn't wanna look it up until it was confirmed.Once it was confirmed we Googled EB. It was scary. We were unsure of what her quality of life would be or how long she had.
Today, Teagyn is a spunky 2 year old. She loves to dance and be silly. She deals with EB with a smile on her face. She is a little fighter who is not gonna let EB hold her back. She truly inspires me and makes me a better person and mother. EB warriors are truly amazing. Thank you for reading our story.
Click the photo above to see our intro post on EB Awareness Week and to learn more about Epidermolysis Bullosa and The Butterfly Fund.